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Hospice Care And Dementia

hospice care and dementia

Hospice care was initially designed for patients with cancer or other terminal illnesses. Unlike dementia, where patients can wind up in a decline that lasts for years, patients with cancer or terminal illnesses follow relatively predictable declines – especially after stopping disease treatment or when treatments no longer work. 

As a result, hospice is built on a “six-month prognosis” model that doesn’t quite fit with most mid-stage or even many late-stage dementia cases. This means we can wind up with complications that are less common for a hospice patient with a 

Understanding Hospice Care And Dementia

The first step to understanding hospice care for patients is understanding hospice eligibility criteria. These criteria are set by Medicare and include an attending physician (if they have one), and the hospice physician certifies them as terminally ill, with a medical prognosis of 6 months or less to live if the illness runs its normal course. This doesn’t mean you automatically lose hospice benefits if you don’t die in six months. In that case, the hospice physician does a reevaluation. You can renew hospice services if they feel six months is still a reasonable prognosis. We’ve had some patients who’ve been on hospice for one or more years because their diagnosis (advanced COPD, heart or lung disease, etc.) can take sudden turns or result in an acute death.  However, we’ve also had patients who had to switch from hospice to palliative care because they improved so much as a result of their hospice care that their prognosis lengthened. Unfortunately, there is a large gap in the healthcare system when it comes to supporting patients with dementia – along with their partners, families, and caregivers. As a result, hospice agencies are doing all they can to provide families with the information and support they need.

Dementia & Hospice Care: When To Call For Help

When spouse and family caregivers are involved, the slow but steady dementia decline can become the proverbial frog in a heating pot of water. In the beginning, the combination of family caregiving – along with professional home care support or respite care – is enough.  However, there comes a point when loved ones with dementia require more care around the clock, and increasing assistance with daily hygiene tasks, which becomes more than any one household can manage. This is the time when hospice can typically step in and help to take over the increasing challenges and tasks.

7 Signs it’s time to connect with hospice

Here are seven of the most common signs it’s time to reach out to local hospice agencies and learn more about what they offer and whether your loved one qualifies. 
  • Your loved one can no longer walk, or transfer from a chair, standing, bed, etc. without support.
  • They can not get dressed or undressed without assistance.
  • They can’t correctly bathe or perform routine hygiene tasks.
  • You’re taking them to more frequent doctor’s visits or making increasing trips to the urgent care, ER, or hospital.
  • Incontinence and soiling themselves are not only the norm, but they can’t take care of the accidents without help.
  • They have trouble drinking, eating, or speaking on their own. In fact, without you there, they may not eat at all.
  • You are burning out. 
Even if it isn’t time for us to step in, we can refer you to some of the area’s most qualified and compassionate home care teams. Then, we can partner with them when hospice criteria are met.

Benefits Of Hospice Care For Loved Ones With Dementia

There are so many benefits of enlisting hospice care to support the later stages of dementia. 

We’re there for family, too

First and foremost, hospice is for the family, too. Your hospice team pays close attention to the needs of the client, but also to their primary family members. We’re here to provide information and education, orchestrate the delivery of durable medical equipment as needed, and provide any and all support we can. Plus, you have access to 24-hour hospice care support on the phone, so you’re never left alone – or wondering – no matter what time of the day or night.

Regular visits from hospice nurses and aides

Our hospice nurses visit according to the needs of the client. In most cases, these visits take place about once per week. Those visits may increase to two or more visits depending on the situation or as the client comes nearer to the end of their life. We also have a team of compassionate aids who step in to provide bathing, clothing and bedding changes, and general grooming needs.

Support from the extended hospice team & volunteers

Hospice care includes a multi-faceted team of individuals who are there as you need them. This includes our social workers, chaplains, and a grief support team.  In addition to our professional hospice team, you also have access to support from our incredible team of hospice volunteers. We have volunteers able and willing to do just about anything, from providing a break to primary caregivers or grocery shopping to helping with gardening chores or walking the dog. Ask for just about anything that you need or could help with – and we’ll see what we can do.

Hospice Patients Don’t Always “Play by the Rules” When it Comes to Dying

We referenced this above, but it’s worth another mention. Unlike many terminal or chronic illnesses, dementia patients don’t “play by the rules” when it comes to the normal dying processes. For example, many of the things that quantify the end of life for a non-dementia patient (losing interest in the outside world, inability to complete daily tasks, or ceasing to communicate) are normal for dementia patients – even when they have many months or years to live. The dementia journey can be long, but hospice agencies are here to do all they can once your loved one meets the qualifying criteria. 

Connect With Hospice of the Golden Isles For More Support

Are you interested in learning more about how palliative or hospice care can support you or a loved one with dementia? Do you sense it’s time to bring in additional support to improve the quality of life for your loved one, yourself, and the family? Contact Hospice of the Golden Isles We believe everyone has the right to live out their journey with grace and dignity, free from pain. Our caring team provides the highest-quality hospice and palliative care that promotes our patients’ dignity, provides for their physical comfort and pain management, and is tailored to their unique social, emotional, and spiritual needs. We also provide caregivers with the support they need to care for their loved ones.