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Creating A Death Vigil Plan For The Days Before You Die

creating a death vigil plan for the days before you die

The term vigil is rooted in the Latin word for awake. When we speak of vigils around deathbeds, the term can refer to those who stay “awake” and hold space and presence for someone who is dying. For some, a vigil encompasses a set amount of time after they die so that caregivers or loved ones have a chance to wash and prepare the body for whatever the next steps are for body preparation, the funeral, burial/cremation, and so on. Vigil plans are ideally created by the dying person and included in any existing End of Life plans. 

In addition to honoring end-of-life wishes, a vigil plan serves as a blueprint of sorts, helping others learn how to be present in a way that supports your well-being as well as the well-being of anyone else who’s present.

Questions To Think About As You Plan Your Death Vigil Plan

One of the most special benefits of choosing hospice care in your home or a hospice house is that you can create a vigil plan that honors your sense of the sacred, the peaceful, the loving, and the meaningful. For some, vigils are very quiet, tender, and reflective, while others may have a vigil that’s quite boisterous and full of visits from family members and friends. Most of us choose to die how we lived – and our vigil plans often reflect that. One more thing worth pointing out is that we’ve repeatedly seen how a client’s vigil plan helped to completely reframe how witnesses and participants view death – making dying feel more natural, sacred, and even beautiful

When Does The Vigil Begin?

The vigil may begin weeks or days before someone dies, depending on the trajectory of their death. Typically, you, your hospice provider, or your primary caregiver(s) recognize signs that you’re moving from a general condition-related winding down to what we call transition or the active dying process. For most, that active dying phase doesn’t last more than a handful of days. The vigil plans commence when those signs are recognized and may begin with calling your closest family and friends to let them know “it’s time.” Here are some of the most common things addressed in a person’s vigil plan, but ultimately they should reflect the wishes of the person who is dying.

When creating a death vigil plan don’t forget the ambiance and atmosphere

Things slow down once someone dies, so most people desire to be surrounded by beauty, comfort, and peace. Or to have access to these things as much as possible. Deathbed ambiance becomes a priority. If certain things aren’t already in place, your vigil plan may consider things like:
  • The pictures/art/visuals you want around you.
  • What about fresh flowers every day or a few living plants?
  • Where you want your bed located (we’ve had clients who wanted to be outside as they died rather than indoors or want their beds moved closer to an open window if weather permits it).
  • Is there a music playlist you’d like to have played in the background? Or 
  • Are there specific smells we can surround you with via essential oils?
  • Would you prefer soft lighting, candles (battery votives/pillars work well if open flames aren’t safe or when oxygen tanks are present), a colored light bulb, or a colorful silk over a lampshade at night?
  • Would you like medical equipment to be kept away from the space unless necessary to keep it more ambient?
The idea is that your bedside environment should be as nourishing as possible.

What would you like people to know while visiting you?

Your vigil plans also help those who come to visit you feel more comfortable. Many people have the feeling, “I don’t know what to do or say…” So, you can let them know things like:
  • Please feel free to take my hand.
  • Please don’t touch my face, feet, etc.
  • If my dog/cat is waiting by the door, invite them up onto my bed.
  • I’d love to be read to from any of the books on my bedstand.
  • I’m interested in hearing your favorite memory of me or our time together. 
  • Don’t be afraid to laugh or find humor along with the tears and sadness.
  • You’re welcome to say nothing at all. Just match your breath to mine and be with me.
  • Do not shut children out of my room; I’d love for them to visit me, read me a story, share their lovey, or play quietly on the floor by my bed or hang their art where I can see it; OR, please let children come and give me a kiss on the hand but don’t let them play on my bed or in the room if I’m sleeping.
These are just a smattering of things to keep in mind, but they help others create the environment you want.

Who do you want to be present if possible (who do you not want present)?

These are both important. If you have family members or loved ones who make you feel more anxious than peaceful, your vigil may not be the place for them. In that case, we recommend having them come to say goodbye (if that’s your wish) before you’re actively dying. If you’d like, perhaps they can write something that someone else can read to you during the vigil so they can be present with you that way. You can also make other requests that make sense, like:
  • Please don’t allow Persons X and Y to visit together. I’d rather have them visit separately. 
  • Topics X, Y, and Z are off-limits at my bedside and in the home/space while I’m dying.
  • I’d like Person X to be present if Person Y is here (with the idea that Person X knows how to hold the comfort/behavior boundaries with Person Y). 
Don’t forget that your hospice team, especially the chaplain or social worker, can be a big help with creating this part of your vigil plan.

After Death Vigils Are Also An Option

Another form of vigil is one that takes place after you die. This may be the place for people who you didn’t want there when you were actively dying. Some cultures and religious traditions have specific timeframes for death vigils, which may be anywhere from 24 hours to 72 hours with the body, and some may last longer after the body has been removed to prepare it for burial or cremation. Sometimes, vigils begin very privately by having your body washed/bathed and anointed by a select group of loved ones as they sing, say prayers, sit for a while, or recite a blessing over you. They can also dress you in what you’ve selected and prepare you for whatever arrangements you’ve chosen with regard to burial or cremation. Depending on the arrangements you’ve made (a few hours or a few days), the after-death vigil can be very helpful for close loved ones who couldn’t get there in time for the deathbed vigil but who appreciate the last opportunity to see you, touch you, and speak with you or be present with you before your body is removed.  Again, some of the same tenets from a deathbed can be applied here in terms of ambiance and who’s welcome to come. 

Let Hospice of the Golden Isles Help Create Personalized Plans For Your Vigil

Are you interested in learning more about what a vigil is or hearing about vigils we’ve participated in creating for other clients? Contact us at the Hospice of the Golden Isles. We’ve witnessed first-hand how meaningful it can be for our clients and their families to take this extra moment and make it as conscious and sacred as possible, and we’re happy to teach you more about that if it interests you.